Helpful Resources
for family & loved ones of children with trisomy 13 & 18
Searching the web probably won’t give you the most encouraging or helpful information about trisomy disorders. The internet is filled with misinformation about trisomy disorders.
You can find some helpful resources here with more encouraging, updated, helpful, and accurate information:
(more info coming soon!)
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Supportive Facebook groups:
Trisomy 13 LIFE Support - Living with Patau Syndrome
Support Organization for Trisomy (SOFT)
Trisomy family stories:
Support for prenatal diagnosis:Palliative care support:
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